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UK Parents Say Life Support to End for Terminally Ill Son

01 July 2017

The parents of Charlie Gard have been fighting for his life much of his short, devastating life. Charlie's parents disagreed with the hospital's conclusion, and that is exactly what they did.

A spokesperson from Great Ormond Street hospital said there would be "no rush" to change Charlie's treatment.

"We're not allowed to choose if our son lives and we're not allowed to choose when or where Charlie dies", they wrote on Facebook. The syndrome is exceedingly rare, with Charlie Gard being one of just 16 people in the world known to suffer from the condition, which results in extreme muscle depletion and weakness.

"We've promised our little boy every single day that we would take him home because that is a promise we thought we could keep", Yates said in a video statement Friday, according to BBC News.

"Not only are we not allowed to take our son to an expert hospital to save his life, we also can't choose how or when our son dies", said Connie Yates, Charlie's mother, The Daily Mail reported.

"We are utterly heartbroken spending our last precious hours with our baby boy".

The court's ruling closed any further path of legal recourse and sealed Charlie's fate.

Charlie's parents raised £1.3m on a crowdfunding site to pay for the experimental treatment in the US.

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Charlie has mitochondrial depletion syndrome, which means he can not hear, move, cry or swallow.

Chris Gard and Connie Yates, wanted 10-month-old Charlie, who suffers from a rare genetic condition and has brain damage, to be taken to the United States for experimental treatment. But on Tuesday, the parent's final hope was extinguished when the Strasbourg court ruled that their application was "inadmissible". The courts sided with the doctors and hospital administrators each time.

His parents said they had been denied their final wish to be able to take their son home to die and felt "let down" following the lengthy legal battle.

Gard and Yates sought to overturn the ruling at the Court of Appeal, but Mr Justice McFarlane upheld the decision that taking Charlie to the United States would "expose Charlie to harm" with little hope of improving his condition.

"If Charlie doesn't get this chance, we will make sure that other innocent babies and children will be saved", she reportedly said in a GoFundMe post that has since been deleted.

In response to these claims by Yates and Gard, the Great Ormond Street Hospital refused to comment publicly on their decisions regarding the end of life care of Charlie Gard.

Mr Justice Francis said that withdrawing life support was in Charlie's best interests, adding that he made the decision with the "heaviest of hearts".

"We and most importantly Charlie have been massively let down throughout this whole process".

UK Parents Say Life Support to End for Terminally Ill Son